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@@ -438,6 +438,8 @@ body:has(dialog[open]) {
color-scheme: light dark;
--font-family: 'Atkinson Hyperlegible Next', sans-serif;
/* if you change the header font, go to post-toc.css and fuck about with the width
of the table of contents */
--font-family-headers: 'Peritel', 'Atkinson Hyperlegible Next', sans-serif;
--font-family-code: 'Atkinson Hyperlegible Mono', monospace;
@@ -496,7 +498,6 @@ body:has(dialog[open]) {
}
/* Base */
* {
box-sizing: border-box;
margin: 0;
@@ -1814,7 +1815,7 @@ switch (currentThemeValue) {
<heading-anchors content="<i class='fa-solid fa-anchor'></i>">
<article data-pagefind-body="">
<h1 id="gender-in-data-models">gender in data models</h1>
<h1>gender in data models</h1>
<div class="post-metadata">
<p>
@@ -1913,7 +1914,7 @@ switch (currentThemeValue) {
<li>This is a work in progress</li>
<li>While I have relied on many articles and talks in collating this resource, as well as on my own experiences as a nonbinary trans person enmeshed in nonbinary and trans communities, it is still largely the work of one person at present and will not represent the views of all trans, nonbinary, or gender-expansive people</li>
</ul>
<h2 id="where-do-we-need-help">Where do we need help?</h2>
<h2 id="where-do-we-need-help%3F">Where do we need help?</h2>
<p>Proofreading and commentary from all readers!</p>
<p>If you're knowledgeable on this topic, additional information and viewpoints are tremendously useful.</p>
<p>If you're new, where do you have questions? What hasn't been explained enough? What do you leave this document still wondering about?</p>
@@ -1948,7 +1949,7 @@ switch (currentThemeValue) {
</ul>
<p>Both of these sources use ‘nonbinary’ as their usual spelling; I am mirroring that here.</p>
<h2 id="issues-and-considerations">Issues and considerations</h2>
<h3 id="do-you-need-gender-data">Do you need gender data?</h3>
<h3 id="do-you-need-gender-data%3F">Do you need gender data?</h3>
<p>It's always worthwhile to stop and look at how relevant or necessary gender information is to your goals.</p>
<blockquote>
<p>&quot;'I would argue that you almost never have to ask for gender,' Stevens said.</p>
@@ -1992,7 +1993,7 @@ switch (currentThemeValue) {
<p>and more. This identifier may or may not be treated as binary and may or may not take into account an individual's medical history.</p>
<p><a href="https://blogs.scientificamerican.com/sa-visual/visualizing-sex-as-a-spectrum/" target="_blank" rel="external">(Montañez, 2017)</a></p>
<p>Outside of healthcare, this is largely unnecessary. For healthcare, see <a href="#two--or-multi--step-approach">Two- or multi- step approach</a> and <a href="#organ-inventory">Organ inventory</a>.</p>
<h3 id="other-or-similarly-named-categories">&quot;Other&quot; or similarly named categories</h3>
<h3 id="%22other%22-or-similarly-named-categories">&quot;Other&quot; or similarly named categories</h3>
<p>As a way to accurately represent gender diverse people, &quot;other&quot; is, quite literally, othering. &quot;Prefer not to say&quot; or similar wording can be an excellent option, but not if it is the only option outside the traditional gender binary that is available to users - in that case, it becomes no longer a preference but a requirement not to say.</p>
<blockquote>
<p>&quot;Researchers have also developed methods to respond to challenges involved in data collection about sexual and gender identities which are culturally specific and unique. For example, in 2011, the government of Nepal attempted the world’s first census in which respondents had the option of choosing 'Male,' 'Female,' or 'Third Gender.' The effort was not successful for a number of reasons, among which was that large proportions of the gender minority population did not identify with the term 'third gender.' Subsequent research determined that the use of culturally specific terms such as 'Methi' and 'Kothi' would have increased the effectiveness of the census effort.&quot;</p>
@@ -2009,7 +2010,7 @@ switch (currentThemeValue) {
<h3 id="free-text-entry">Free text entry</h3>
<p>This approach provides much of the benefits of an expansive list, and removes the drawbacks discussed above. However, it comes at the cost of making data storage and analysis more expensive, challenging, and time-consuming. It may additionally still contribute to user confusion for anyone who is uncertain where or how the information will be used or whether there are expected responses.</p>
<p>For smaller projects, however, this is still an option. Or you can offer this to a small subset of users who find that the available options don't fit - see <a href="#not-listed-here">Not listed here</a>.</p>
<h3 id="assumptions-that-a-single-term-will-fully-encompass-gender-especially-in-a-more-exhaustive-list-of-options">Assumptions that a single term will fully encompass gender, especially in a more exhaustive list of options</h3>
<h3 id="assumptions-that-a-single-term-will-fully-encompass-gender%2C-especially-in-a-more-exhaustive-list-of-options">Assumptions that a single term will fully encompass gender, especially in a more exhaustive list of options</h3>
<p>Especially when providing expansive lists or allowing write in fields, ensure that terms that are not mutually exclusive must be chosen as though they are. This is the reasoning behind guidance for a two-step approach, described in more detail in <a href="#two--or-multi--step-approach">Two- or multi- step approach</a>, which &quot;measures assigned sex at birth and self-reported gender identity at the time of the survey&quot; <a href="https://williamsinstitute.law.ucla.edu/publications/data-collection-sogi/" target="_blank" rel="external">(Park, 2016)</a></p>
<blockquote>
<p>&quot;...some terms aren’t mutually exclusive, and framing them as such is offensive, Mons said: 'For example, if we list Man, Woman, Non-Binary, Trans Man and Trans Woman, <strong>does that separation imply that someone who is trans and identifies as a man is not a man?</strong>'&quot;</p>
@@ -2031,7 +2032,7 @@ switch (currentThemeValue) {
<p>Including &quot;gender not listed here&quot; or a similar response provides an out for anyone who does not feel represented by the available options. You could follow this up with a free text entry field.</p>
<h3 id="allow-for-changes">Allow for changes</h3>
<p>Avoid treating gender as an immutable category - make sure users have the ability to edit it.</p>
<h3 id="two-or-multi-step-approach">Two- or multi- step approach</h3>
<h3 id="two--or-multi--step-approach">Two- or multi- step approach</h3>
<p>As mentioned briefly above, a two-step approach separates gender and assigned sex at birth, allowing healthcare systems additional information about the patient. See <a href="#wpath-guidelines-on-emr">WPATH guidelines on EMR</a> and associated reference for more details.
This may also be expanded to a multi-step approach, with questions covering some/all of</p>
<ul>
@@ -2055,7 +2056,7 @@ This may also be expanded to a multi-step approach, with questions covering some
<p><a href="https://www.healthit.gov/isa/sites/isa/files/2017-11/JAMIA%20-%20Transgender%20Health%20and%20EMRs.pdf" target="_blank" rel="external">(Deutsch, et. al, 2013)</a></p>
<p>Refer to the reference linked above for detailed examples of organ or surgical history inventories.</p>
<p>Additional reference (added Sep 2024): <a href="https://www.rainbowhealthontario.ca/wp-content/uploads/2021/09/Guidelines-FINAL-4TH-EDITION-With-2023-Updates.pdf" target="_blank" rel="external">(Bourns, 2023)</a></p>
<h3 id="differentiate-with-cis-and-trans">Differentiate with ‘cis’ and ‘trans’</h3>
<h3 id="differentiate-with-%E2%80%98cis%E2%80%99-and-%E2%80%98trans%E2%80%99">Differentiate with ‘cis’ and ‘trans’</h3>
<p>Avoid questions that contrast ‘male’ and ‘trans male’ or any parallel set of terms. Either contrast ‘cis male’ and ‘trans male,' or allow respondents to choose multiple responses.</p>
<h2 id="healthcare-or-legal-systems">Healthcare or legal systems</h2>
<p>These systems add additional requirements and restrictions. In cases like these, it may be helpful to have an additional field for <strong>legal gender/sex designation</strong> (usually set to F, M, or X) in order to allow for alignment with existing documentation without preventing self-identification on the part of the individual.</p>
@@ -2121,59 +2122,55 @@ This may also be expanded to a multi-step approach, with questions covering some
<section class="related-posts">
<h2 data-ha-exclude="" id="related-posts">related posts</h2>
<h2 data-ha-exclude="">related posts</h2>
<ol id="postlist">
<li class="post">
<a class="postlink" href="/fd-signifier-and-oppositional-sexism/">
<h2 data-ha-exclude="" id="fd-signifier-and-oppositional-sexism">fd signifier &amp; oppositional sexism </h2>
<a class="postlink" href="/textures-unite/">
<h2 data-ha-exclude="">textures unite </h2>
<ul class="postlist-tags">
<li>gender</li>
<li>knit</li>
<li>highlight</li>
</ul>
<img src="/img/sheep.jpg" alt="Image unrelated to post. A mama sheep with two babies curled up next to her in a grassy field." loading="lazy" decoding="async" width="1000" height="450">
<img src="/img/textures-unite.jpg" alt="a largely unseen person holds up an expansive knitted shawl, built in 6 sections of different textures and colors. in the background, trees and dappled sunlight." loading="lazy" decoding="async" width="1000" height="1334">
</a>
</li>
<li class="post">
<a class="postlink" href="/queer/">
<h2 data-ha-exclude="" id="queer">queer </h2>
<a class="postlink" href="/tooled-leather-patches/">
<h2 data-ha-exclude="">tooled leather patches </h2>
<ul class="postlist-tags">
<li>print</li>
<li>card</li>
<li>sticker</li>
<li>pin</li>
<li>leather</li>
<li>gender</li>
<li>patch</li>
</ul>
<img src="/img/queer-print.jpg" alt="A print of the word queer in black ink. The letters are rounded with elongated oval negative space." loading="lazy" decoding="async" width="1000" height="750">
<img src="/img/pronoun-patch-scroll.jpg" alt="two tooled leather patches. they have scrolls tooled on them that read various pronoun sets." loading="lazy" decoding="async" width="1000" height="750">
</a>
</li>
<li class="post">
<a class="postlink" href="/trans-the-world/">
<h2 data-ha-exclude="" id="trans-the-world">trans the world </h2>
<a class="postlink" href="/rambouillet-handspun/">
<h2 data-ha-exclude="">rambouillet handspun </h2>
<ul class="postlist-tags">
<li>print</li>
<li>yarn</li>
<li>shirt</li>
<li>gender</li>
<li>highlight</li>
</ul>
<img src="/img/trans-the-world-print.jpg" alt="A print that reads &#39;trans the world&#39; surrounding an image of a globe and a trans symbol. It&#39;s in a ping-to-blue gradient." loading="lazy" decoding="async" width="1000" height="750">
<img src="/img/rambouillet-handspun.jpg" alt="1 large and 2 small skeins of handspun yarn in a sport or DK weight that has been dyed in light and dark teal, green, and rusty green-gold." loading="lazy" decoding="async" width="1000" height="666">
</a>
</li>
@@ -2230,6 +2227,6 @@ This may also be expanded to a multi-step approach, with questions covering some
</footer>
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</body>
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